Patient organizations

A list of patient organizations

AADC Research Trust  

Charity Organisation that helps children and their families affected by Aromatic Amino Acid Decarboxylase Deficiency (AADC) 


Spanish patient organization for families affected with neurotransmitter related disorders 


Organization from Spain for patients and families with Non-ketotic hyperglycinaemia (NKH) 


Pediatric Neurotransmitter Disease Association (PND)   

Organization for children and families who are affected by pediatric neurotransmitter diseases 

Children Living with Inherited Metabolic Diseases   

Patient organization for inherited metabolic diseases. 

Rare Diseases Europe (EURODIS)   

Alliance of rare disease patient organizations 


iNTD Families 

 Facebook Group where patients with neurotransmitters related disorders and their families can meet and exchange their experiences:



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